Frau Silke Mader
European Foundation for the Care of Newborn Infants
CV
Profile
Chairwoman and founding member of an international foundation for preterm children with a professional background in child care and pre-school teaching. As a former patient with HELLPsyndrome and a mother of preterm born twins in week 25 (twin boy survived with 515 grams, twin girl deceased), I built on my personal experience to improve the care for preterm and sick newborns first in Germany and now worldwide.
Career history
Chairwoman and Founding Member since 2019
Global Alliance for Newborn Care (GLANCE), Munich, Germany
▪ GLANCE is a global network to represent the interests of Neworns who are born too soon, too small, or too sick
▪ In times of the pandemic, GLANCE joined forces with partnering parent organisations, healthcare professionals and medical societies all over the world to develop its first global campaign “Zero Separation. Together for better care! Keep preterm and sick babies close to their parents”.
Chairwoman and Founding Member since 2008
European Foundation for the Care of Newborn Infants, Munich, Germany
▪ It keeps growing and has now up to 18 employees
▪ created a pan-European network of national parent organisations and initiated close cooperation with European and national professional societies
▪ founded world-wide initiative World Prematurity Day in 2008 which reached a global media audience
Membership
Member of the Gesellschaft für Neonatologie und Pädiatrische Intensivmedizin GNPI)
Former Member of Directors Board of NIDCAP Federation International
Former Member of Directors Board of Preterm Birth International Collaborative (PREBIC)
Regular Member of the NIDCAP Federation International
Member of self-help association “Preemies in Munich”
WHO Advisory Board Role
Permanent Patient Representative in the following WHO working groups:
▪ Maternal and Newborn health
▪ Every Newborn Action Plan
▪ Nurturing Care
▪ Standards for small and sick newborns
▪ Kangaroo Mother Care, STAGE
PUBLICATIONS
Scientific Publications
Kostenzer J et al. (2021). Zero separation: infant and family-centred developmental care in times of COVID-19. The Lancet Child and Adolescent Health. https://doi.org/10.1016/S2352-4642(21)00340-0
Navarro Alonso JA et al. (2021). RSV: perspectives to strengthen the need for protection in all infants. Emerg Themes Epidemiol; 18(1):15. https://doi:10.1186/s12982-021-00104-5
Kostenzer J et al. (2021). Neonatal care during the COVID-19 pandemic – a global survey of parents’experiences regarding infant and family-centred developmental care. EClinicalMedicine. 39:101056. https://doi.org/10.1016/j.eclinm.2021.101056
Fügenschuh S et al. (2021). A call for zero separation – restrictive policies and their impact on neonatal care in light of COVID-19. Infant; 17(3). www.infantjournal.co.uk/journal_article.html?id=7217
Fügenschuh S et al. (2021). Maßnahmen und praktische Tipps zur Verbesserung der parenteralen Ernährung bei Früh- und kranken Neugeborenen. Kinderkrankenschwester; 8.
www.kinderkrankenschwester.eu
Hoffmann J et al. (2021). Parenterale Ernährung bei Früh- und kranken Neugeborenen – Ergebnisse einer Umfrage zu Barrieren in der klinischen Anwendung. Kinderkrankenschwester; 7:195-197. www.kinderkrankenschwester.eu
Fügenschuh S et al. (2021). Parenterale Ernährung bei Frühgeborenen. Frühgeborene; 2:41-44. www.fruehgeborene.de/der-verband/verbandsmagazin-fruehgeborene
Hoffmann J et al. (2021). Parenterale Ernährung in deutschen Perinatalzentren. Monatsschrift Kinderheilkunde; 169(6). https://doi.org/10.1007/s00112-021-01219-4
Kostenzer J et al. (2021). Making human milk matter: the need for EU regulation. The Lancet; 5(3), 161-163.
Lindacher V, Altebaeumer P, Marlow N, Matthaeus V, Straszewski IN, Thiele N, Pfeil JM, Zimmermann LJI, Mader S (2020). European Standards of Care for Newborn Health—A project protocol. Acta Paediatrica, 1–6.
Zimmermann LJI, Kostenzer J, Mader S (2020). Tackling bronchopulmonary dysplasia (BPD) to improve preterm health – A call for family-centred care at World Prematurity Day 2020. American Journal of Physiology-Lung Cellular and Molecular Physiology, 319(5), L867-L870.
Koletzko B, Bergmann K, Thomas Brenna J, Calder P, Campoy C, Tom Clandinin M, Colombo J, Daly M, Decsi T, Demmelmair H, Domellöf M, FidlerMis N, Gonzalez-Casanova I, van Goudoever JB, Hadjipanayis A, Hernell O, Lapillonne A, Mader S, Martin CR, Matthäus V et al. (2019), Should formula for infants provide arachidonic acid along with DHA? A position paper of the European Academy of Paediatrics and the Child Health Foundation. The American Journal of Clinical Nutrition, 111(1), 10-16.
Oehmke F, Lauer T, Baecker J, Mader S, Soydan N, Born T, Brumhard M, Dettmeyer R, Staszewski S,Heinemann T, Kilian U, Sarikaya Y, Kress H, Tinneberg H-R, Bilgin Y, Zimmer K-P, Ehrhardt H (2019). Ethical, Legal, and Religious Aspects at the Border of Viability. Frontiers in Pediatrics, 7, 175.
Thiele N, Walz JM, Lindacher V, Mader S, Greisen G, on behalf of the EFCNI Parents Advisory Board (2019). Parental views on the principles for cluster randomised trials involving neonates and infants. Acta Paediatrica, 108(5), 789-791.
Walz JM, Thiele N, Mader S (2018). Erwartungen von Eltern an die Versorgung von Frühgeborenen – Sicht einer Elternvertretung. Frauenheilkunde up2date, 12(1), 75-86.
Walz JM, Thiele N, Mader S (2018). Erwartungen von Eltern an die Versorgung von Frühgeborenen – Sicht einer Elternvertretung. Neonatologie Scan, 7(1), 61-72.
Matthäus V, Haiden N, Abou-Dakn M, Berns M, Eglin K, Flemmer A, et al. (2018). Empfehlungen zur Förderung von Frauenmilchbanken in Deutschland, Österreich und der Schweiz (D-A-CHRaum). Monatsschrift Kinderheilkunde, 166(8), 722-729.
Thiele N, Knierim IN, Mader S (2016). Parents as Partners in Care: Seven Guiding Principles to Ease the Collaboration. Newborn and Infant Nursing Reviews, 16(2), 66-68.
Knierim IN, Matthäus V, Schönberg U, Mader S, Thiele N (2016). Combining forces for preterm infants – the European Foundation for the Care of Newborn Infants (EFCNI). infant journal, 12(6), 228-230.
Mader S, Matthäus V. (2016). Verbundenheit und Stärke über gemeinsame Ziele. Fiduz-Infoblatt, 38(2).
Koletzko B, Benninga MA, Godfrey KM, Hornnes PJ, Kolacek S, Koletzko S, Lentze MJ, Mader S, McAuliffe FM, et al. (2014). Public–Private Collaboration in Clinical Research During Pregnancy, Lactation, and Childhood: Joint Position Statement of the Early Nutrition Academy and the European Society for Pediatric Gastroenterology, Hepatology, and Nutrition. Journal of pediatric gastroenterology and nutrition, 58(4).
Souza JP, Widmer M, Gülmezoglu AM, Lawrie TA, Adejuyigbe, EA, Carroli G, Crowther C, Currie SM, Dowswell T, Hofmeyr J, Lavender T, Lawn J, Mader S, et al. (2014). Maternal and perinatal health research priorities beyond 2015: an international survey and prioritization exercise. Reproductive health, 11(1), 61.
Lawhon G, Helm JM, Buehler D, McAnulty G, Kosta S, Alberts JR., Als H, Mader S, et al. (2013). NIDCAP Federation International Response. Pediatrics,132(2), e550-e551.
Keller M, Felderhoff‐Mueser U, Lagercrantz H, Dammann O, Marlow N, Hüppi P, Buonocore G, Poets C, Simbruner G, Guimaraes H, Mader S, et al. (2010). Policy benchmarking report on neonatal health and social policies in 13 European countries. Acta Paediatrica, 99(11), 1624-1629.
WHO & International Publications
Born Too Soon. The Global Action Report on Preterm Birth. Eds. Howson CP, Kinney MV, Lawn JE. March of Dimes, PMNCH, Save the Children, World Health Organization. New York 2012. (technical editor)
Every Newborn Action Plan (Advisory Board). An action plan to end preventable deaths. World Health Organization. Geneva 2014.
Survive and Thrive (Advisory Board). Transforming care for every small and sick newborn. World Health Organization. Geneva 2019.
EFCNI Publications
Zero separation. Together for better care! Infant and family-centred developmental care in times of COVID-19 – A global survey of parents’ experiences. Project Report. European Foundation for the Care of Newborn Infants (EFCNI), Kostenzer J, von Rosenstiel-Pulver C, Hoffmann J, Walsh A, Fügenschuh S, Abenstein A, Zimmermann L.J.I, Mader S & COVID-19 Zero Separation Collaborative Group. EFCNI, Munich. 2021.
Zero separation. Together for better care! Infant and family-centred developmental care in times of COVID-19 – A global survey of parents’ experiences. Project Report. Short Version. European Foundation for the Care of Newborn Infants (EFCNI), Kostenzer J, von Rosenstiel-Pulver C, Hoffmann J, Walsh A, Fügenschuh S, Abenstein A, Zimmermann L.J.I, Mader S & COVID-19 Zero Separation Collaborative Group. EFCNI, Munich. 2021.
Caring for Tomorrow. EFCNI White Paper on Maternal and Newborn Health and Aftercare Services. Eds. Keller M, Saugstad OD, van Steenbrugge G, Mader S, Thiele N. European Foundation for the Care of Newborn Infants. Munich 2011.
Too little, too late? Why Europe should do more for preterm infants. EU Benchmarking Report 2009/2010. Eds. Keller M, Lagercrantz H, Merialdi M, Poets C, Saugstad OD. European Foundation for the Care of Newborn Infants. Munich 2010. (co-author)
Book Chapters
Kolossa S, Mader S, Pfeil J, Zimmermann LJI (2021). Involving Parents in Feeding Their Preterm Infants. In: Nutritional Care of Preterm Infants. Scientific Basis and Practical Guidelines. World Review of Nutrition and Dietetics. 2021, Volume 2. Koletzko B et al. (Eds.).
Mader S & Bouvard C (2014). Expérience des parents de nouveau-nés prématurés pendant et après l’hospitalisation. In Soins de développement en période néonatale. Sizun J, Guillois B, Casper C, Thiriez G & Kuhn P (Eds.).
Haumont D, Zimmermann LJI, & Mader S (2013). The situation and the challenges with regard to preterm birth in Europe – Why reducing the incidence of preterm birth matters and the main components needed to successfully address the challenges. In Improving the quality of childhood in Europe, Volume 4. Heys B, Matthes M, & Sullivan P (Eds.) Forrest Row: ECSWE.
For further information on the foundation and my work please check:
https://www.efcni.org/
https://newborn-health-standards.org
https://www.glance-network.org/
HONOURS
Honorary Titles
Honorary Lecturer since 2014
Queen's University Belfast, School of Nursing and Midwifery, Belfast, UK
Honorary Member of the Directors Board since 2014
European Association of Perinatal Medicine
Awards
Bavarian State Medal 2016
▪ During an official ceremony in Nuremberg on 14 October 2016, Silke Mader was awarded with the Bavarian State Medal for Services Concerning Health and Long-term Care by Melanie Huml, the Bavarian State Minister for Health and Long-term Care. *
“Iconic” Award 2016
▪ At the ALL Ladies League (ALL) – Women Economic Forum 2016 in New Delhi, India, Silke Mader received the “Iconic Innovative Trailblazer of the Decade” award.
Ashoka Fellow 2015
▪ Silke Mader has been awarded as social entrepreneur and Ashoka Fellow in 2015 Bavarian European Medal 2013
▪ awarded by Ministry of Federal and European Affairs of the Bavarian State, Germany
▪ recognition for individuals who have contributed to the promotion of the European idea in Bavaria and to the promotion of Bavaria in Europe "Prix Courage" Award 2013
▪ presented by the public-service German television television programme „ML mona lisa" and the
French beauty brand Clarins
▪ award to women who are distinguished by their special commitment to children and adolescents
